The Truth About Breast Cancer is Not Pretty and it’s not Pink

“Incidence rates of distant-stage disease have remained stable.”

- From the latest report on breast cancer from the American Cancer Society, discussing breast cancer incidence over the last several decades.

After 25 years of marking National Breast Cancer Awareness Month and promotion of mammography and early detection as the cure, the reality for 40,000 women who die from breast cancer each year remains unchanged.  Despite the increase in catching early, smaller tumors with the increased mammography, the incidence of women diagnosed with a later stage breast cancer, one that has spread beyond the breast, HAS NOT CHANGED.  Of the close to 180,000 women diagnosed each year with breast cancer, approximately 37% are diagnosed with later stage cancer every year, and still others have a breast cancer recurrence.  Why?  If mammography was going to be our cure why hasn’t breast cancer mortality declined dramatically after all these years?

The truth is that mammography and early detection are not the cures for breast cancer that everybody thought they would be, but we can’t seem to get off this train.  Pink marketing and promotion of early detection have taken on a life of their own, way out of proportion to the actual benefit.  What’s the harm?  The harm is that we’ve lost our focus for finding the real answers.  We continue to fail those 40,000 women every year.  We need less focus on “early detection” and more focus on understanding the reality of breast cancer -  how to stop the aggressive cancers that aren’t detected with mammography, how to stop breast cancer from recurring, and how to prevent it from metastasizing to other parts of the body and becoming lethal.

National Breast Cancer Awareness Month was established 25 years ago by AstraZeneca, a pharmaceutical company that has produced breast cancer drugs including Tamoxifen and Arimidex.  The goal was to promote mammography as the “most effective weapon in the fight against breast cancer.”  But back then, everybody thought breast cancers were all the same.  We now know breast cancer is not one disease, and that different breast cancers take different paths, grow at different rates, and spread differently.  Mammography is probably most helpful in finding the slowest growing and least harmful kind of breast cancer.  Many women who are diagnosed with an advanced breast cancer have “interval” cancers, or cancers that were discovered in between regular mammography screenings, or are younger women who don’t yet get regular mammograms.

If success was measured in awareness and pinkness, I’d say AstraZeneca’s campaign has far surpassed their wildest expectations.  But if we ask has mammography turned out to be the most effective weapon?  Are significantly less young women and mothers dying of breast cancer?  Then sadly the answer would be NO.

Let’s  move beyond the hype for our next National Breast Cancer Awareness Month and demand a focus on what we really need to cure this disease.

5 comments so far

  1. marie on

    I wonder where your statistics come from, I’m not questioning them at all, just would like to cite a source before passing this on.
    I’m a stage iv patient… bracing myself for the onslaught of pink this month.

    • breastcanceradvocate on

      I’m sorry I did not put a link to the statistics. I got the information from the American Cancer Society’s Report “Breast Cancer Facts & Figures 2009-2010.” You can download the report at http://www.cancer.org/docroot/stt/stt_0.asp. They use data from the National Cancer Institute’s Surveillance, Epidemiology & End Results (SEER) program. Page 7 of the ACS report shows the striking graph – flat lines showing incidence of large tumors and later stages over time. No changes over all these decades.

  2. kittykitty7555 on

    You are right and the American Cancer Society is close to admitting it! Maybe you saw this in the New York Times:

    http://www.nytimes.com/2009/10/21/health/21cancer.html?scp=2&sq=gina%20kolata&st=cse

    You have done a wonderful public service by educating people about this issue when the powers that be were giving people advice that could subject them to unnecessary cancer treatment. And what could be worse than that? It must be horrific even if you need it.

    At any rate, many thanks for an intelligent alternative point of view.

  3. breastcanceradvocate on

    I did see the NYTimes article – it’s causing quite a stir! Here is an article and video from ABC News on the controversy.

    http://abcnews.go.com/WN/CancerPreventionAndTreatment/breast-prostate-cancer-screening-criticism-stirs-debate/Story?id=8881664&page=1

  4. Tami Boehmer on

    Amen to that. We need to find out why the disease spreads and find a cure. I was first diagnosed with Stage II, no lymph node involvement and a slow-growing cancer. My prognosis was excellent. Now I’m looking at Stage IV cancer. Early is better than later, but it still can happen. So enough patting themselves on the back and put money into finding a cure.

    BTW: I still think women should do self breast exams and mammography. It’s all we have for now.


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